Participatory Space Beyond the “Autonomy Versus Property” Dichotomy




Skloots, R. 2010. The Immortal Life of Henrietta Lacks. Bethel CT: Crown Publishers.


Tallacchini, M. 2005. Rhetoric of Anonymity and Property Rights in Human Biological Materials (HBMs), Law and the Human Genome Review Jan-June, 153–175.


Tallacchini, M. 2007. Ethics between Law and Politics: The Case for Human Biological Materials, Proceedings of the Congress “Wert Urteile, Judging Values”, May 9–11, Karlsruhe. ​www.​werturteile.​de/​start/​index.​php?​whereami=​Publication&​language=​e, January 2008.


Tallacchini, M. 2009. Governing by values, EU ethics: Soft tool, hard effects. Minerva 47(3): 281–306.


Tutton, R., et al. 2004. Governing UK Biobank: The importance of ensuring public trust. Trends in Biotechnology 22(6): 284–285.PubMedCrossRef


UNESCO, Report of the International Bioethics Committee (IBC) of UNESCO on Consent, Social and Human Sciences Sector Division of Ethics of Science and Technology, Bioethics Section SHS/EST/CIB08-09/2008/1, UNESCO 2008.


US Supreme Court. (2007). Office of the Clerk, Washington DC 20543-0001 August 20, 2007, ​prostatecure.​wustl.​edu/​pdf/​SupremeCourtLett​er.​pdf.


Winickoff, D., and R. Winickoff. 2003. The charitable trust as a model for genomic biobanks. NEJM 349: 1180–1184.PubMedCrossRef


Wright Clayton, E. 2005. Informed consent and biobanks. The Journal of Law, Medicine and Ethics 33(1): 5–21.


Wynne, B. et al. 2007. Taking European Knowledge Society Seriously. DG Research Science, Economy and Society, Brussels.